but you'll be pleased to know I 'm OK .... but perhaps more tired/breathless than previous chemo treatments have left me ..
Saw Kate briefly this morning, and went to town, also briefly, this afternoon. I've also been busy sorting out financial matters, and good news is my 1/2 pay from work has longer to run than I thought it did!
I'm going to do my best to look after B at the moment - she had had to cope with so much, and she needs something back from me, now I've had the clear scan .... things are different in my head ..
ppl who can cope with lesbian love poetry can see the poem I just recently wrote for her over in the Take Heart blog ....
Do you think that buying coloured shoes could be an under-reported a side-effect of cancer?
I'm not really the Imelda Marcos type, but since this diagnosis I've bought two pairs of high heeled satin shoes with sequins, IN THE SAME STYLE, one pair black and one pair pale pink.
Then I found the purple moccasins, often admired by women of good taste (e.g. Kasia). These were quickly followed by the much maligned mulitcoloured deck shoes (which I now can't wear because my lovely sister described the colour on the top as prosthetic-pink !!!! )
Then only yesterday I invested in a pair of minnie-mouse high heels in dusty-pink suede!!!
What is going on?
If some ppl weren't so cheeky I'd post a photo - but I'm hiding their light in a discrete bushel (unlesss the weight of public opinion demands an expose, of course!)
Don't feel too bad, tho obviously ~I am feeling the usual "sick and tired" .. the sensitivity in my hands is less than it has been and my arm isn't too sore from it all.
Thanks to everyone for all the kind messages you sent on the last post .. it's been a hard couple or three weeks for us, B especially has found it hard to keep going, and I got a bit weepy myself this week .. but hey ho .. things move on ...
it's the weekend!
Mum and dad were up this week, but have set off home now, after gathering me and my big belongings from the hospital this morning. It was very wet!
and the infection got worse and my temperature went up and I dozed and the path lab identified the bug and the doctor said we cannot do the chemo and he made me stay in hospital and gave me antiobiotics from a drip and they couldn't use the hickman line cos it had moved and the other doctor had to take out the hickman line and my temperature rose and the RMO looked stressed and I was stressed and Brigid was stressed and I cancelled most visitors and I slept and the first docotor said you've got to stay in and my temeperature rose and the RMO looked more stressed and sweated some more and chest x-rays were taken and swabs were taken and samples of fluids were analysed
and then the antibiotics kicked in
and now I am home again.
It has been a hard and scarey week. Brigid has struggled with it all.
AND now he wants me back for chemo on Tuesday ........ and to re-insert a hickman line the week after and more chemo as usual the week after that
so June turns out to be quite a month in hospital for me ..... for info if you are going to visit at any time! PLANNING Tues 12 - Fri 15th June ~ CHEMO NOT DONE DUE TO INFECTION
Tues 19th - Fri 22nd June ~ BACK IN FOR 7th LOT OF CHEMO
25th - 30th June~ mainly at home, PROBABLY GETTING NEW HICKMAN LINE on Thursday 28th.
Tues 3rd July - Fri 6 July ~ BACK IN FOR 8th CHEMO
Conwy was grand - the weather an absolute treat and the room as luxurious as before, though actually a different suite, this time with the bedroom having an estuary view as well as the lounge bit ...
I was poorly on Sunday. I had absolutely no energy, kept dozing off on the way home and didn't want to eat much (which of course is a very rare symptom for me, and thus quite alarming!) My temperature had crept up to 38 as well, which is quite a jump on my normal temperature. We decided to pop into the hospital on the way past cos I am petrified of the danger of septicemia. The doctor there gave me a once over and phoned my consultant to check what to do with me.
The decision was: to take a blood culture, give me antibiotics and tell me to come back if my symptoms worsened. They've not called me back, so I assume the blood culture didn't show anything too alarming.
I was so tired when we got in that I went to bed and never even logged onto the computer, which is almost as shocking as me not eating much ..
Anyway, I passed a feverish night but feel a lot more alert this morning and temp has gone back to normal zone, so fingeres crossed!
so me and b are having tea tonight and she enquires about who's been in touch with me today.
B : Have you heard from your sister? Me: Yup B : She OK? Me: Yeah, think so, she's only been on the blog, not on the phone B : Was she cheeky? Me: Strangely ... no she wasn't! B : Are you sure it was her?
We had a great break in Lyme, I tended to spend extra hours each morning in bed, while B bobbed about running up cliff-fronts and along the Cobb. I dunno if it it real exhaustion or just habit and laziness (as a certain caring sharing sister erm, "hinted" !)
We met up with the aforementioned sister and her men-folk most days and had some good meals and chats together, which was lovely. I also saw mum and dad a couple of times and detoured off for lunch with my internet mate in Bristol on the way home.
Today has been a bit busy. Our stupid freezer had been open while we were away and filled up with ice and frost so it needed de-frosting. I had to put on my silk gloves and rubber gloves to protect myself from the cold in order to do it today. It proper wore me out.
Then I had a lovely visit from MORE internet pals, Glossy and her missis, in town on tour with the Opera, *dahling* .. oh it sounds glam doesn't it? I hope to see Glo again as she is here all week.
Hospital Dates and other stuff NOTE NOW CHANGED - red colour shows latest update 17th June As far as I know I've got this schedule:
Weds 6th June - minor op to insert the Hickman line for future admin of chemo Thurs 7th June - CAT scan (trying not to think about this - scared that there might be more tumours growing in me)
Friday - buzzing off for another weekend in Conwy! YAY - NICE - and this DID happen!
Tues 12 - Fri 15th June ~ back INSIDE chemo, 7/12NOT DONE DUE TO INFECTION
week 18th - 22nd June ~ Home Alone, open to offers - BACK IN FOR 7th LOT OF CHEMO
Tues 26th - Fri 30th ~ back INSIDE chemo, 8/12PROBABLY GETTING NEW HICKMAN LINE
week 2nd -6 July ~ Home Alone and still open to offers BACK IN FOR 8th CHEMO
And so on ....... alternate weeks for the next two months .... blood counts permitting!
Tho there will be less of the home alone in August cos B will be on holidays too !