I feel very well, considering. The pain is not a fraction of what I had to deal with after my first abdominal surgery, and I feel pretty good. Of course, last time was a much bigger op, deeper into my body and needing a stoma creation as well. Plus I'd been battered by radiation and chemo in the preceding weeks, so altogether lots of reasons for it to be worse then and better now.
Psychologically I am trying not to think what three visible secondaries might mean for me, long term. Spots on both sides of my lungs can only be bad news. I will see Dr Adab as soon as he's had histology results from my bowel tumour. I guess within a couple of week, and then he will be telling me his treatment plan.
I got the impression that chemo was the most likely route, as the spots are small and might go with chemo ..... but there was a passing mention of the option to deal with them surgically ... which is tricky with both sides being involved ... but then I am super-fit atm ...
Whatever, they certainly won't entertain surgery if they get a bad answer to the big unanswered question: are these three just the tip of a metastasizing mountain of mini-tumours seeded all about my abdomen? I'll probably have a PET scan to tell them that.
http://www.macmillan.org.uk/Cancerinformation/QAs/701.aspx
..
<>
14 comments:
Glad you are feeling so recovered. Stay positive: the spot/s on your liver were sapped by chemo last time.There are bound to be black dog moments,but we are all rooting for you.
I shall pop to see you once I have rid myself of the lurgy cough/cold that a visit to Geraldine passed on to me. Celia F
Thats more like it 4 paragraphs must be feeling better Ho Hooo. Just got back from Santa Pola, being thinking of your Plan ahead might join u in France as long as there are no hills between Espania & France (was never any good at history) have a peaceful day Luv Malc XXX
Really clear info Suze - thanks. It is good to hear that the surgury hasn't been as difficult as last time. The questions that are hanging in the air are pretty tough though, and I think we will all be waiting for the news from yr PET scan. Fingers and toes crossed. It is so great that you have worked hard on getting fit, I am sure that is really working for you right now.
lol
Liz
x
(I wonder if a Morris Traveller would get up the Alps?!)
Glad it wasn't as painful this time round, I've got my fingers crossed for you. Hope they can treat you straight away and you get better really soon, glad you're fit as well, that must help.
Thinking of you, Laura xxxx
p.s- just been reading your other comments, reminds me how wonderful your family and friends are and that we're all here for you :) xXxXx
All seven of us here in Ireland have just read and discussed your last posting. Delighted you are feeling OK and that the pain is not so bad. Hopefully they can do the PET scan shortly to put your mind at rest. We all hope and pray that there is nothing more sinister than the two spots that were visible on the initial scan.
Could the tumour seeds be in the abdomen or lungs or just the abdomen? Hopefully the fact that the first scan and operation did not show this will mean this is not the case.
All thinking of you both here on a daily basis and kids ask for updates.
Take care,
Dave, Leonie and the five kids xx xxxxx
Warning - do not watch the link I have pasted on FB until your stitches feel really strong! Lx (today's password is disanity, strangely apt)
Hi Cousin Sue, Just read the latest & pray that the lung shadows are noting serious. I'm glad there is very little pain this time. As you say, you are super fit in other areas. I do intend to visit in the near future.
Lots of love from Pauline & co. xxx
hi -- it is just a question of wait and see to know how bad the secondaries situation is ... the options are:
bad
very bad
even worse!
the thing with advanced cancer is that the seeds / crumbs can literally drop anywhere -- my onco was very clear about this, two years ago -- your abdomen is a cavity, and fliud slides about it, and the cells move about it in ... and can drop literally anywhere...
lung and liver are common places for secondaries to start .... tho as CF says, I had them on my liver b4, but the chemo wiped them out
so the best hope is that the lung mets are the only ones in there, and that chemo can sort them out. This is the bad option - just cos chemo is tiresome and closes down your life
the very bad situation would be if the surgery I already had hasn't got the bowel thing out, and/or the lungs don't respond to treatment
So far there is no evidence of it getting into my bones, but that's another possibility ... which would proably qualify as even worse ..
let's not waste energy on fearing situations that may lie ahead, atm I've just got to get over the operation!
Glad to know you're all reading, and sending me good vibes
xxxxx
lots of love
Hello there suze,
it's good to read you're recovering quickly from your op and wishing you the very best of luck with your (probable) PET scan.
I'm still star struck by the cycle up the mountain you and B undertook in the summer - it's like a motif of how I see you now, pedalling up the mountainside surrounded by wonderful views, fit and super determined.
Anne/guppy xxx
thanks guppy - I was looking at the pic of me and B together on the mountain, that we bought off the professional -- it is lovelyl
butwhilst on the one hand it fills me with happy memories on the other it gives a dark sense of fear that memory might be all it is now ...
sorry .. don't like to be melancholic in here .. I will give myself a shake and do a new thread with the very picture in!
You know me and the hyaena are thinking positive stuff for you, right?
S2
x
This time, next year we'll have new photos of new climbs... and new memories.
I've been trying to send you a message on facebook but I've had problems with it over the last coupe of days. Account inactive? WTF! So, just a quick one in here (given that it's open to the public): this Wednesday is a goer, assuming you're feeling well enough for a visitor (and assuming I haven't caught the lurgy from K). I'm free all day and/or night, so you just let me know when you want me to come over.
Love you and thinking of you
xx
Hi Suze, keep the spirits up. Can't wait to come and see you after half term and have a gossip. I love the cycling pictures here and by the way you have single-handedly converted me to facebook. Tell me what day you want me to come over on there and I'll pop in after work. Love, Sukhraj.
Post a Comment